Dear Parent or Guardian,
We are studying the rewards, stresses, and quality of life of parents of children with ASD (including Autism, Asperger’s, and Pervasive Developmental Disorder Not Otherwise Specified) as their children with transition out of high school.
If you have a child with Autism, Aspergers, or PDD-NOS (Pervasive Developmental Disorder –not otherwise specified) AND your child is in high school (grades 9-12) in Canada OR your child completed high school in Canada within the last 3 years, we are interested in hearing from you. If you have more than one child who fits the above criteria, please fill out the survey for the child who you believe has the most impact on your family's quality of life.
If you choose to take part in this study you will be asked to fill out a survey related to the following:
· Background information like your education level, languages spoken in the home
· Your stresses and rewards associated with your child’s transition out of high school
· Family Quality of Life
· Child Behaviour
· Coping Methods
· Details related to your child’s transition out of high school
The survey will take roughly 1 hour to complete. You may pause and come back to filling out the survey at any time if you have cookies enabled on your browser by simply returning to the website. Your responses will be collected online and stored on a password protected computer in a locked office. The only people that will have access to your data are the primary researcher, his supervisor, and research assistants. You will be assigned a participant number so no identifying information will be associated with your data.
Upon submission of your survey data, you will be given the opportunity to leave your email on a separate site to be entered to win one of five $20.00 VISA gift cards for your participation. Group results will be posted at http://www2.unb.ca/~bdentrem once they are analyzed. Your individual results will not be provided. Your email will be kept separately from your data and there will be no way to associate your email with your responses. You may choose to withdraw from the study at any time by simply not completing the questionnaire and closing your browser. Your incomplete data will not be saved or included in the overall results. Should you have any concerns regarding this research that you do not wish to share with the principal investigator, you may contact Dr. Sandra Byers, Chair of the Psychology Department at (506) 458-7803, the Chair of the Psychology Ethics Review Committee, Dr. Daniel Voyer at (506) 453-4974, or the chair of the UNB Research Ethics Board, Dr. Steven Turner at (506) 458-7433 (REB # 2016 - 115).
Thank you for your interest in our research project.
Jay Best (Ph.D. Student) Dr.Barbara D’Entremont, Ph.D., L. Psyc.
University of New Brunswick Professor,University of New Brinswick