Project Title:Online Research for Parents of Children with Autism Spectrum Disorder: Quality of Life Study

Principal Investigator: Mandy Fulton

Address: Psychology Department, University of New Brunswick, Fredericton, NB

Email: t533z@unb.ca

What is it about?

We are conducting a study examining the well-being of school-aged children with autism spectrum disorder (ASD). We invite you to participate in this study.

Who is doing it?

The study is being conducted by Mandy Fulton, a PhD Candidate in the Department of Psychology at the University of New Brunswick under the supervision of Barbara D’Entremont, Ph.D., a Professor in the Department of Psychology at the University of New Brunswick.

What will I have to do?

If you choose to participate, you will complete an online questionnaire. The survey takes most people approximately 20 minutes to complete all of the questions. You will be asked to complete demographic questions and questions about the child’s autism symptoms, behaviours, functional skills, task persistence, parent’s mental well-being, sibling type, school type, reciprocal friendships, and participation in activities.

 

What will I get for participating?

MTurk workers: you will receive $2.00 USD. 

Community members: You may choose to enter into a draw for one of five chances to win $20.00 USD . Your answers will provide important information for helping professionals to better understand the quality of life of children with ASD.

 

How will my answers be kept confidential and private?

 

This study will not collect any personal information such as your name or address. All information will be kept strictly confidential. The data are stored on a secure server on the University of New Brunswick website. The server is protected by a firewall. Data will be stored on password-protected computers that only the researchers have access to.

 

What are my rights as a participant in this survey?

 

Participation is completely voluntary.You may choose not to answer a specific item and continue with the questionnaires. You may also choose not to continue the study for any reason at any time by closing your browser. Your data can only be used by the researchers after you click the submit button at the end of the survey.

Why might I not want to do it?

We do not expect that you will feel uncomfortable during the study. However, sometimes people are upset by answering questions about their child with ASD. In order to provide you with more information we have provided resources about ASD and quality of life on the debriefing page that will appear at the end of the study. 

Who can I contact for more information?

If you have questions at any time, please contact Mandy Fulton at t533z@unb.ca, or Dr. D’Entremont at bdentrem@unb.ca

This project is on file with the Research Ethics Board at the University of New Brunswick (REB#2016-125). If you have questions or concerns about your rights or treatment as a participant please contact the Chair of the UNB Department of Psychology Ethics Board at rhamilto@unb.ca.

 

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